About Our Chapter
Just a decade ago, after hearing the words “You have ALS,” a person with Lou Gehrig’s Disease in Louisiana or Mississippi had nowhere to turn. Upon receiving the diagnosis of this fatal disease, persons with ALS were expected to simply go home and get their affairs in order. The endeavor to organize a local chapter of The ALS Association began in Baton Rouge, La., in 2001 with an all-volunteer effort and the goal of offering help and hope for families affected by ALS in the area. The ALS Association Louisiana Chapter was founded in 2005 and expanded to include the state of Mississippi in 2009.
The ALS Association Louisiana-Mississippi Chapter’s programs are designed to fill in the gaps not met by the healthcare community, health insurance and government assistance. The chapter’s services include home visits with pALS and their caregivers; assistance with healthcare navigation; support groups for pALS and their caregivers; a durable medical equipment and assistive technology loan closet; a multidisciplinary clinic; a transportation program; respite for caregivers; outreach to identify new patients; education and awareness; and advocacy efforts on a state and national level. The ALS Association is the only organization in Louisiana and Mississippi providing all of these programs.
The ALS Association (National Office and the Louisiana-Mississippi Chapter) operates under a shared mission: to lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.
We work together to accomplish our mission. The Louisiana-Mississippi Chapter focuses primarily on helping local patients and families living with ALS while the National Office leads global research and advocacy efforts The Chapter supports the National Office through revenue sharing and research contributions. The National Office supports the Chapters by providing up-to-date information, materials and other assistance.
Our accomplishments are made possible by the generosity of others. From the smallest donation to the largest gift, donors touch the ALS community with hope for the future.