In The News

Thank you for visiting our "In the News" section, a valuable resource for both the community and media professionals.  Request "Connections" eNewsletter and receive regular clinical and scientific updates, advocacy updates and other highlights from The ALS Association.

  Public Awareness Campaigns
  The ALS Association In The Media
  National News Archive
  A Reason For Hope Magazine


May 2016 Newsletter

 louis-miss-chap_red-logo_white-bx.jpg

ALS awareness license plates coming in 2016!

ALS Plate

The ALS Association Louisiana-Mississippi Chapter is excited to announce that both Louisiana and Mississippi have been approved to print ALS Awareness license plates! We are now accepting applications for Mississippi residents, contact information for Louisiana residents, and holding a design contest for both states! Click here, select your state for more information regarding the application process, and/or click “Design a Tag” for more information regarding the design contest.

MISSISSIPPI RESIDENTS: In order to get plates printed, we are required to collect 300 pre-orders. Spread the word!

If you have questions about disability plates/placards and ALS awareness plates, please call Jamie Craig at (800) 891-3746, ext. 2.


Gala held in Baton Rouge

 

The ALS Association's annual gala and auction was held on April 21 at the Renaissance Baton Rouge Hotel, raising close to $110,000 for the fight against ALS. Thank you to all who participated, donated and sponsored the event. 


ALS awareness license plates coming in 2016!

ALS Plate

The ALS Association Louisiana-Mississippi Chapter is excited to announce that both Louisiana and Mississippi have been approved to print ALS Awareness license plates! We are now accepting applications for Mississippi residents, contact information for Louisiana residents, and holding a design contest for both states! Click here, select your state for more information regarding the application process, and/or click “Design a Tag” for more information regarding the design contest.

MISSISSIPPI RESIDENTS: In order to get plates printed, we are required to collect 300 pre-orders. Spread the word!

If you have questions about disability plates/placards and ALS awareness plates, please call Jamie Craig at (800) 891-3746, ext. 2.


Thanks to our 2015 Walk to Defeat ALS Corporate Sponsors

October 2015 walk sponsors with logos 2October 2015 walk sponsors


Archives

2015 Walk to Defeat ALS

2015 Walk Dates

The 2015 Walk to Defeat ALS is underway! The Walk is The ALS Association's largest event and biggest fundraiser -- providing funds for programs for the coming year. Sarah and Chelsea are here to help you get the most out of your Walk experience. We want your team to succeed and are available to provide teambuilding tips, fundraising ideas and resources. If you would like to discuss how you can prepare for the walk, contact Sarah or Chelsea today!

Still need to register? Sarah and Chelsea can take care of that for you as well. Just click their names above or call 225-343-9880 x7!

The Walk supports programs including in-home patient and family consultations, support groups, multidisciplinary ALS clinics, educational symposiums, a durable medical equipment and assistive technology loan closet, respite for caregivers, advocacy and awareness efforts, and research for a treatment and a cure.



Thanks to our 2015 Walk to Defeat ALS sponsors!

October 2015 walk sponsors


Meet our newest staff member, Brittly Godfrey! 

Britley.jpg
Brittly is our new Care Services Coordinator for Louisiana Regions 4, 5, and 6. She is from Lafayette, La. and attended LSU for her BA in Sociology and completed her Master degree program at Southern University of New Orleans. She is an animal lover, which lead her to rescuing 2 dogs and becoming a pet owner. Her interest with ALS is associated with her passion of helping others. "Being a helping hand, shoulder to lean on, and learning how to weather storms that life can sometimes bring were always instilled in me during my upbringing. Therefore, I decided to turn it into a career that I love." Welcome Brittly, we are very lucky to have you!

 

Presenting Sponsor Knight Oil Tools Golf to Defeat ALS

Knight Oil Tools Logo

Knight Oil Tools is proud to be the presenting sponsor of the the ALS Association Louisiana-Mississippi Chapter’s Walk to Defeat ALS. Their 2nd Annual Golf Tournament is a fundraiser for the Lafayette Walk.  The 1st Annual Golf Tournament raised  $8750. This year, they are challenging you to help them by saying, “Let’s beat last year’s donation”. August is a “Hot” month so there may be Ice Bucket Challenges at the event, too!
Mickey Broussard, cheif operating officer of Knight Oil Tools, has been a supporter of The ALS Association Louisiana-Mississippi Chapter since 2012; and recently joined the board of directors. His Mother passed away in January, 2015; Mickey will continue to support the organization until we live in a world without ALS.

Knight Oil Tools will be participating in the Walk to Defeat ALS in Lafayette on Saturday, October 24th at ULL’s Bourgeois Park. How can you help? Please join us to play golf on August 29th, 2015 at the Jay and Lionel Hebert Municipal Golf Course! We hope to see you there!

To register go to http://webla.alsa.org/goto/knightoiltoolsgolf2015. Follow the directions on the site to pay your fee and register. 

 
Thanks to our 2015 Walk to Defeat ALS sponsors!

Sponsors with logos .jpg

Sponsors with logos 2.jpg


Baton Rouge Presenting Sponsor: Celtic Group 

LA_2011 Celtic Logo celtic studios

 

The Celtic Group has been a generous supporter of The ALS Association Louisiana-Mississippi Chapter for years. The organization continues to sponsor our largest fundraisers, The Walk to Defeat ALS and our annual gala. This year, CEO and Chairman, Michael O'Connor has stepped up to be the corporate recruitment chair of our Baton Rouge Walk to Defeat ALS. With the responsibility, Michael decided it was time for The Celtic Group to be the Presenting Sponsor of this event. Michael's personal connection to Lou Gehrig's Disease drives him, his family, his co-workers and his company's to support.

Michael said, "My personal exposure to ALS happened approximately six years ago, when my friend was diagnosed with ALS. It was upsetting to see his deterioration over the last five years until his death from this terrible disease. My brother-in-law had been experiencing symptoms that correlate with ALS, also known as Lou Gehrig’s disease, for the past eight years, but he wasn’t diagnosed until 2012. I did not realize the journey that I would embark on - the loss of our dear friend and the blessing of slow progression for my brother-in-law. I am grateful to have witnessed how our human spirit can unite our faith, family and friends to raise awareness for the ALS patients, their families and the caregivers."

The Celtic Group is a network of companies which began with the founding of Celtic Marine Corporation in July 1985. At the time Celtic was founded, the concept of third party logistics providers (known today as 3PLs) was almost unknown in the transportation industry.

The Celtic Media Centre is one of the latest ventures of The Celtic Group. The Celtic Media Centre is Louisiana's first and only full service studio/sound stage complex built from the ground up and managed to meet the exacting requirements and standards of the international motion picture production industry.


Thanks to our 2015 Walk to Defeat ALS Corporate Sponsors

Sponsors with logos.jpg

Sponsors with logos2.jpg


Meet our New Full-time Staff Member

Avery

Avery McMahon is a recent graduate from Louisiana State University and is our new Development Associate! Avery will be helping with the Walk to Defeat ALS and working to really make a difference in the fight against ALS. She will also be your go-to person for any questions about the Walk to Defeat ALS website. We are so excited to have her on our team along with YOURS!

Please contact Avery at avery.mcmahon@alsalams.org and add her on Facebook! www.facebook.com/avery.mcmahon.1

 


 

ALS License Plates Coming Soon

license plates

Louisiana and Mississippi governors have signed a bill that will create an ALS prestige license plate in both states. Stay tuned for more information on how you can purchase one! We hope to have more details next month. 

 


 

Walk Fundraiser Highlights

Ron's Rowdies.jpg

Last month Ron's Rowdies Walk to Defeat ALS team in Baton Rouge hosted a walk fundraiser at Tin Roof Brewing Company. The team was able to raise more than $600. We would love to hear how your team is fundraising. Send fundraising ideas to Sarah.paretti@alsalams.org. 

 


 

ALS Awareness Day at the Louisiana State Capitol

louisiana_state_capitol2.jpg

Each year, The ALS Association Louisiana-Mississippi Chapter hosts ALS Awareness Day at the Louisiana State Capitol. On Thursday, May 7, the chapter will have a table in the rotunda of the building with information about ALS and The ALS Association’s programs. In addition, the first-, second- and third-place winners of “The Luckiest Man” Essay Contest will meet their senators and representatives and be presented before the legislature. The students are Henry "Trey" Steele III of Robert E. Lee Junior High School in Monroe, first-place winner; Najia Harry of St. James High School (middle school) in St. James, second-place winner; and Emily Roy of Berwick Junior High School in Berwick, third-place winner.

ALS advocates – pALS, caregivers, families and friends – are encouraged to join the chapter on May 7. If you are interested in meeting personally with your senator and/or representative to share how ALS has impacted your life, please send an e-mail to Avery McMahon at avery.mcmahon@alsalams.org.

Your voice counts! 

 


 

Register NOW for the 2015 Walk Season!

2015 Walk Dates


Strike Out ALS: 2015 ALS Awareness Games 

Baseball

Join us this baseball season at an ALS awareness game near you.

 

 

May 8, 6p.m.: ALS Awareness Night at ULL

July 30, 7 p.m.: ALS Awareness Night at Zephyr Stadium

 


Ole Miss Phi Delts to host Hoops for ALS Tournament 

phi delt

Join the Ole Miss Phi Delts for the Hoops for ALS fundraiser. The event will be a tournament comprised of three-person teams. It will take place at 10 a.m. on April 12  at the Tad Pad parking lot. The event will feature music, food, drinks and basketball all day. The Open League winner will receive $1,000. For more information, visit http://www.hoopsforals.com/.


 

5th Annual Jumping 4 PALS Skydive Fundraiser 

Jumping for pals.jpg

At 8 a.m. on Saturday April 18 at Skydive Nawlins, Baton Rouge Walk to Defeat ALS team Melba's Angels will host the 5th Annual Jumping 4 PALS Skydive Fundraiser. A film crew will be present at the event and will begin filming a documentary about ALS. Jumpers are asked to raise $200 in donations in addition to the cost of jumping ($190). This year's event will be held in memory of Derek Walton and Pegi Hodges who won their battle with ALS within the past year. For more information, click here


St. Charles Borromeo Walk to Defeat ALS

499cfae152786ec0095520c1e37cc993.jpg

St. Charles Borromeo Catholic School in Gulfport raised more than $3,500 at its annual Walk to Defeat ALS! The event initially started in 2012 when the school was unable to attend the Gulf Coast Walk and has grown to an annual event. It was a huge success this year! Thank you to everyone who came out to support the The ALS Association and the pALS in the area. 


Walk to Defeat ALS Committees

 

Committee pic.png

Committee members are still needed for the Mississippi walks, Jackson and Gulfport, as well as the Shreveport Walk. We would love for you to join us once a moth to help prepare for our big walk day celebrations in the fall. This committment will take not more than 15 hours out of your whole year. Contact Sarah Paretti at sarah.paretti@alsalams.org if you would like to join the committee. 


33 Variations coming to Jackson in April 

33v_web-homepage-image.jpg

New Stage Theatre in Jackson, Mississippi will be doing a production of "33 Variations," April 14-26. One of the themes in this production is the progression of  musicologist Katherine Brandt's disease, ALS, and her relationship with her daughter. For more information, visit New Stage Theatre's website.


 

Social Media - Walk Team Feature.jpg

Thank you to the teams that have already registered for the Walk to Defeat ALS!


Lunch-and-Learn

lunch and learn.jpg

Stay tuned for more information regarding lunch-and-learns coming up in April. Our care services staff will be hosting several throughout Louisiana and Mississippi where they will cover the topic of respiratory equipment and questions such as, "When is the time is right to consider this equipment? How do I use the Trilogy? and How do I maintain and clean the device? 


Shreveport March Support Group will have counselor present

care services.jpg

Counselor Dixie L. Richards M.A. will be present at the Shreveport support group meeting on March 10. She practices in the Shreveport area and has worked with other families dealing with devastating illnesses. This meeting will take place at 6:30 p.m. at Willis Knighton. Don't miss this fantastic opportunity!

If you have any questions, please contact Lauri at 225-343-9880 ext. 3.

 

 


 

St. Charles Borromeo Catholic School to host annual St. Charles Walks to Defeat ALS

school-kids-schoolhouse.jpg

St. Charles Borromeo Catholic School in Picayune, Mississippi is having its annual St. Charles Walks to Defeat ALS Friday, March 13 from 1:15 p.m. - 2:45 p.m. Everyone is invited and is asked to provide a minimum donation of $3.00 to participate. Donations of $25.00 or more will be recognized by having the donor’s name placed along the fence during the walk. If you are interested in sponsoring a child from the school for the walk, please contact the school office at (601) 799-0860. We would love to see many people from our community participate. Please invite friends and family to attend!


ALS advocate spreads awareness at school

Colton

Colton Nickles is in the 5th grade at East Rankin Academy in Pelahatchie, Mississippi. He was was given the class assignment of presenting a living biography, and chose to do his assignment on Lou Gehrig. He did a wonderful job spreading ALS awareness.


Year In Review

Check out what we were able to accomplish in 2014 thanks to your generous contributions by clicking here.


'The Luckiest Man' essay contest begins in Louisiana

Lou w-bat hi-rescrop.jpg

 

The ALS Association Louisiana-Mississippi Chapter's annual essay contest will be held again this year in Louisiana, with the top three winners to be presented before the state legislature on May 7. This awareness effort will give Louisiana eighth graders the opportunity to learn more about ALS while sharing their thoughts on why Lou Gehrig was "The Luckiest Man." For more information, call Sarah Paretti at (225) 343-9880, ext. 7 or e-mail sarah.paretti@alsalams.org.


Register NOW for the 2015 Walk Season!

2015 Walk Dates

 


 

2015 ALS Awareness Games 

Baseball

Join us this baseball season at an ALS awareness game near you.

 

May 1, 7 p.m: Military Night at Zephyr Stadium

May 8, 6p.m.: ALS Awareness Night at ULL

July 30, 7 p.m.: ALS Awareness Night at Zephyr Stadium

 


 

Purchase Raffle Tickets Today! 

southwest             

The ALS Association is hosting two raffles in conjunction with the Red, White & Sneaux annual gala. For $5, you could win two Southwest Airlines tickets to anywhere in the continental U.S. Raffle tickets for an instant wine cellar (50 bottles of wine) are $10. Both drawings will be held at the gala on January 13, 2015 at Boudreaux's in Baton Rouge. 

To purchase raffle tickets or tickets to the gala, click here

 


 

Mark Your Calendar: 2015 Walks to Defeat ALS Scheduled

Walk to Defeat ALS logo

Make sure to mark your calendar for the 2015 Walk to Defeat ALS** near you:

October 3: Jackson Walk to Defeat ALS at Trustmark Park in Pearl, Miss. 

October 10: Shreveport Walk to Defeat ALS at Louisiana Boardwalk in Bossier City, La.

October 17: New Orleans Walk to Defeat ALS at Audubon Park in New Orleans, La. 

October 31: Baton Rouge Walk to Defeat ALS at Highland Road Community Park in Baton Rouge, La. 

**The Mississippi Gulf Coast and Lafayette Walks to Defeat ALS dates and locations are to be determined. Stay tuned for more information!

The Walk to Defeat is The ALS Association's biggest annual event and raises funds to sustain patient services programs and support research for treatment and a cure. More than just a few-mile trek, it's an opportunity to bring hope to ALS patients, to raise money for a cure, and to join together to fight for something we care about. The Walk to Defeat ALS empowers patients, friends, families and the business community to fight back against a disease that leaves many feeling powerless.

If you have any questions or to find out how you can get involved, please contact Elise Bernard or Chelsea Moreau at elise.bernard@alsalams.org or at chelsea.moreau@alsalams.org.  

 


Chapter Welcomes Two New Care Services Coordinators

The ALS Association Louisiana-Mississippi Chapter has expanded its care services program in the Tupelo, Miss., area with the hire of Whytnie Howell and welcomes Lauri Pearson to the Shreveport, La., area. Both will serve as care services coordinators.  

Prior to working with the Chapter, Howell worked in family medicine for six years. Based in north Mississippi, Howell will support persons with ALS (pALS) and their families in counties north of Highway 82. Currently, The ALS Association is assisting 11 pALS in this area.   

“What I’ve found about this position and The ALS Association that is so amazing is that everything is about the pALS – from fundraising to care services, it’s not about what we can get from people, but how we can help!” Howell said. “Despite knowing there is no cure YET, our patients are not alone. We are all family!”

Pearson is based in north Louisiana and will support pALS and their families in Caddo, Bossier, Webster, Natchitoches, Ouachita, Bienville, Jackson and Winn parishes. The ALS Association is currently serving 29 pALS in these parishes.

Pearson previously worked as a vaccine and pharmaceutical sales representative, and she has a master’s degree in health science, with a concentration in rehabilitation counseling, and bachelor’s degrees in psychology and English.

“I really enjoy helping people and finding answers for people with ALS,” Pearson said. “The people I have met have been resilient and strong in the most difficult times of their lives. I am really enjoying getting to know the families!”

As care services coordinators, Howell and Pearson will conduct in-home visits with pALS to assess needs, answer questions and provide information via phone and email consultations, assist with healthcare navigation, ensure that pALS are taking advantage of all available resources, and facilitate support groups in Tupelo and Shreveport. 

 

 


Lucie Bruijn lab

Lucie Bruijn, chief scientist at The ALS Association, visits Baton Rouge

More than 50 people were in attendance when Lucie Bruijn, Ph.D. spoke on Thursday November 20 in Baton   Rouge. Her presentation included an overview of ALS research, news on promising studies funded by The ALS Association, and information on specific programs benefiting from Ice Bucket Challenge donations. A video of her presentation will be posted next week.

 


 

harley davidson

Win a 2004 Harley Davidson Screaming Eagle!

Team Rusty is raising money for The ALS Association Louisiana-Mississippi Chapter with an exciting raffle. With just $40, you could be riding a 2004 Harley Davidson Screaming Eagle. Tickets will be sold at events throughout the New Orleans and Northshore area through December. You can purchase tickets online HERE. Thank you to Team Rusty, who walks in honor of Charles "Rusty" Read.

 


 

Red White Sneaux logo

Glazer's to sponsor wine tasting at Red, White & Sneaux

This year's event will take place at Boudreaux's in Baton Rouge on Tuesday, January 13. The evening will feature LSU Baseball Coach Paul Mainieri as honorary chairman, music from the John Gray Jazz Trio, a wine tasting led by Glazer's, food and drinks, live and silent auctions, and a raffle for an Instant Wine Cellar.

Sponsors include Numotion, Lofton Staffing & Security Services, Southern Care Hospice and Rotolo's.

Auction items include two tickets to Bayou Country Superfest, a football signed by Drew Brees, art from Helen Bolin, jewelry from Lee Michaels and much more.

To purchase tickets or learn more about sponsorship opportunities, click HERE.


Looking for a wheelchair-accessible van?

2012 chrysler van

The ALS Association Louisiana-Mississippi Chapter website includes a page with wheelchair-accessible vans and durable medical equipment for sale by families in the ALS community. Click here for more information. 


What could $5,000 provide for our chapter and our programs?

14 iPads that could be used by a person with ALS who has lost the ability to speak but still has use of his or her hands.

A visit to the ALS Multidisciplinary Clinic for 5 persons with ALS.

2 educational sympsiums for patients, families and the healthcare community.

50 in-home consultations with a care services coordinator with a patient and his or her caregivers.

20 manual wheelchairs for our durable medical equipment loan closet.

8 hours of respite for 15 caregivers.

3 Hoyer lifts to allow a caregiver to more easily move his or her loved one with ALS.


New Orleans Walk to Defeat ALS benefits from Jesuit High School volunteers

The New Orleans Walk to Defeat ALS, held October 11, had an amazing group of volunteers this year that included nearly 200 students from Jesuit High School. The students gave their time in honor of Father Raymond Fitzgerald, president of Jesuit. Read more about their involvement here

 


2013 walk t-shirt

Thank you to our 2014 Walk to Defeat ALS sponsors! 

Lafayette:

Presenting Sponsor: Knight Oil Tools

 

Knight Oil Tools Logo


Sleep Management

Numotion logo

Numotion

Superior Van & Mobility

Guidry's Electrical Service

Acadian Companies

Permobil

Scotco Pipe

Pizza Village

Our Lady of Lourdes

Community Coffee

Baton Rouge:

Presenting Sponsor: ISC Constructors

ISC constructors.png 

 

lard oil logo

Wright and Percy logo

 

Transformyx logo

 

chase jpmorgan combo

 

LA_2011 Celtic Logo

 

Celtic Media Centre logo

 

Numotion logo

 

Blue Cross and Blue Shield of Louisiana

Our Lady of the Lake Regional Medical Center

Superior Van & Mobility

EATEL

Moore Construction

Cajun Industries

Landsource Inc.

Permobil

CommCare Baton Rouge Health Care Center

SJB Group

Planche Politz Ledet

LUBA Workers Comp

 

 

New Orleans:

Numotion logo

Mr. Wheelchair

Superior Van & Mobility

Canon Hospice

Blue Cross and Blue Shield of Louisiana

Retif Oil

Valero St. Charles Refinery

Pride Mobility Products/Quantum Rehab

Guardian Angel Hospice

Crescent Vans

Permobil

 

Jackson:

Presenting Sponsor: Mississippi Braves   

good braves logo

news channel 12 wjtv

 

bcbsms

 

Numotion logo

 

iHeart Radio

 

AM620hallelujah955miss103105.1 the river z106

 

 

 

Grantham Poole

Permobil

Pride Mobility Products/Quantum Rehab

Southern Farm Bureau Life Insurance

Shreveport:

Numotion logo

Blue Cross and Blue Shield of Louisiana

Permobil

Mary McWilliams, M.D.

Gulfport:

Home & Bath Solutions

Singing River Health System

Numotion

Encore Rehabilitation

Permobil


Volunteer of the Month

delaina moreau

Delaina Moreau has volunteered for The ALS Association Louisiana-Mississippi Chapter for three years, serving in several capacities at chapter events -- everything from taking pictures on walk day to setting up auction tables at the gala to manning a booth at  ALS Awareness games at Zephyr Stadium. She has also served on and hosted meetings for the  New Orleans Walk to Defeat ALS committee.

This year, Delaina formed a walk team with her company, Moreau Services. Moreau Services is currently the top fundraising team and several members will even be assisting with cooking for the big event. Delaina is also giving her time to embroider backpacks that will be given to pALS on walk day.

Her work is done in honor of all pALS as well as to support her daughter, Chelsea, who serves as an event coordinator with The ALS Association Louisiana-Mississippi Chapter.

Thank you, Delaina, for everything you do! 

 


 

Jackson Walk to Defeat ALS breaks records!

hope mcnair    michael liles    braves mascot    steve desalvo

 

Participants at the Jackson Walk to Defeat ALS enjoyed a new venue this year -- Trustmark Park in Pearl, MS. Thanks to Presenting Sponsor Mississippi Braves and Walk Chairman Steve DeSalvo, general manager of the M-Braves, the event on Saturday, September 27 was a huge success.

 

With some 1,000 walkers, volunteers, media partners and sponsors, the Jackson Walk to Defeat ALS has raised more than $100,000 so far -- and the number is growing. After all funds are received and entered, it is expected that the walk will have raised $110,000. If you have collected more donations, please mail them to The ALS Association Louisiana-Mississippi Chapter, P.O. Box 66825, Baton Rouge, LA, 70896.

Thank you again to our walk planning committee: Steve DeSalvo, Becky Oakman, Jimmy Waters, Christine Bridges, Heather Lolley, Lynnsey Douglas, Tonya Oliver and Brandi Nickles.

Thank you also to our sponsors: Mississippi Braves, WJTV, Blue Cross Blue Shield of Mississippi, iHeart Radio (AM520, Hallelujah95, Miss103, 105theriver, z106.7), numotion, Grantham Poole CPAs, Permobil, Pride Mobility Products, Quantum Rehab, Southern Farm Bureau Life Insurance, and Cosmich, Simmons and Brown. Music was provided by The Stonecoats. WJTV's Melanie Christopher and Byron Brown served as MCs. Al Eckhardt, a veteran living with ALS, sang the national anthem. We are so grateful for your support!

Thank you also to the community of Pearl and all of the Mississippi Braves' neighbors for promoting and participating in the walk: 

Walk awards went to:

Top Fundraising Team Michael's Militia

Top Corporate Team Mississippi Braves 

Top Rookie Team Richie

Largest Family and Friends Team Kirby Crusaders

Most Spirited Team Michael's Militia

Top T-Shirt Design Julie's Jewels

Best Wheelchair Decorations Lil Dot's Dream Team

 


Shreveport/Bossier supporters: Stop by Gateway Tire and Service Center in October!

If you live in the Shreveport/Bossier area, stop by your nearest Gateway Tire and Service Center for an oil change on a Tuesday this month. Three dollars from every Tuesday oil change during October will be donated to The ALS Association Louisiana-Mississsippi Chapter as part of the "Gateway Gives Back" campaign. This includes all 11 Ark-La-Tex locations. Be sure to watch KSLA-TV for commercials promoting the campaign.

 


 

Caring for the Caregiver: Respite and Support Groups

As ALS progresses, the assistance of a caregiver is needed 24 hours a day. In most situations, a family member is serving as the primary caregiver. The cost of caring for a person with ALS can be up to $250,000 a year, often leaving no room for respite -- an interval of rest or relief -- for family members providing the care. Caregivers are at risk of exhaustion, illness, anxiety and depression when balancing the needs of their patients, families, careers and themselves.

If caregivers have their own plan for self care, it can enhance the quality of life for both the caregiver and the patient. The more relaxed and fulfilled that a caregiver feels, the more easily he or she can provide the necessary care to the patient. Persons with ALS often appreciate a break from the normal routine as well.

The ALS Association Louisiana-Mississippi Chapter offers programs to help meet the needs of caregivers with three Caregivers Connections support groups in Baton Rouge, New Orleans and the Mississippi Gulf Coast. The Baton Rouge group meets on the second Wednesday of each month at 6 p.m. The New Orleans group meets on the first Thursday of each month at noon. The Mississippi Gulf Coast group meets  on the first Wednesday of the month at 11:30 a.m. Please call (800) 891-3746, ext. 3 for information on locations.

The ALS Association's Respite Care Program also provides caregivers with a break -- to spend time with others, relax, run errands, attend church, etc. "A person with ALS can't be left alone," one caregiver explained. "The Respite Care Program was a blessing. It gave me a chance to go to my children's activities, get a haircut, go to the grocery store ..." Knowing that her husband was getting the proper care he needed while she was away was essential. "That is what kept us going," she added. "Knowing that there was help." For more information about the Respite Care Program, please call (800) 891-3746, ext. 3 or e-mail dora.couret@alsalams.org. 


 

Mississippi Braves to host ALS Awareness Night

On Saturday, August 22, the Mississippi Braves will host an ALS Awareness Night, where the players will wear special camouflage baseball caps representing The ALS Associaiton and the Mississippi Army National Guard. The players will sign their respective caps and put them up for auction that night. All proceeds will go to The ALS Association Louisiana-Mississippi Chapter. The first 1,500 fans will receive a replica cap. In addition, the Braves will donate $2 for every ticket purchased at the gate as well as proceeds from the Tennis Ball Toss. For tickets, visit www.mississippibraves.com or call (601) 932-8788. pALS and their caregivers: please contact Brandi Nickles at (800) 891-3746, ext. 3 for more information regarding special accommodations.

camo cap

 


 

volleyball

 

Spike for ALS volleyball tournament

 

The 5th annual Spike for ALS Tournament will be held Saturday, August 9 at 9 a.m. The fee to participate is $20 per person. To download the registration form, click here.

 


 

 

fish

"Lou Gehrig's Disease can Kiss my Bass"

Jimmy and Mickie Roberts have partnered with the Ark-La-Tex Sports Foundation for a bass fishing tournament to be held on Saturday, August 2 at Grice's Landing in Ringgold, LA. Registration will begin at 5 a.m. and the tournament will be from 6 a.m.-1:30 p.m. with an awards ceremony at 2 p.m. Entry fee is $35 per person if you register by July 25. A free tournament t-shirt will be included for all pre-registered participants. The day will include hourly weigh-ins, lots of prizes and BBQ plates for purchase. Proceeds will benefit The ALS Association Louisiana-Mississippi Chapter.

For more information, visit www.arklatexsportsfoundation.org.

 


 

sherry barber

The ALS Association Louisiana-MIssissippi Chapter recognizes Sherry Barber as its Volunteer of the Month. After learning that two women in her circle of friends were living with ALS, Sherry knew she had to do something. Ultimately, she found several ways to be a part of the fight against ALS. She joined a group of people who provide meals for the families, ran the Louisiana Marathon in honor of her friends, and joined the Baton Rouge Walk to Defeat ALS planning committee.Thank you, Sherry, for building awareness of ALS, raising funds to support care services programs, and for sharing your time with our pALS.

 


Lard Oil wears red for ALS awareness

lard oil wear red

Employees at Lard Oil Company, a sponsor of the Walk to Defeat ALS, wore red in May in recognition of ALS Awareness Month. The company walks in memory of John Hebert, an employee who passed away from ALS last year. Stay tuned for more information about Lard Oil's fall fundraiser.


"The Luckiest Man" Essay Contest winners announced in Louisiana

louisiana essay winners

Thanks you to all the eighth grade students in Louisiana who participated in the annual "The Luckiest Man" Essay Contest, hosted by The ALS Association Louisiana-Mississippi Chapter. The top three essays were written by Mary Catherine Reggie of Berwick Junior High in Berwick, first-place winner; Katelyn Foreman of St. Margaret Catholic School in Lake Charles, second-place winner; and Emma Hays of The Dunham School in Baton Rouge, third-place winner.

Senator Page Cortez and Representative Stuart Bishop recognized the students at the Capitol on May 15. The students' senators and representatives from their districts presented them with certificates.

The essay contest is an opportunity to educate young people on the legendary New York Yankee, Lou Gehrig, who was diagnosed with ALS in the prime of his record-setting baseball carer. Through it all, Gehrig presented a public face of courage, perseverance and humility. Click here to read the winning essays. 

 


 

The ALS Association Louisiana-Mississippi Chapter Board of Directors

Thank you for your service!


President: Claire Drummond, RD, PA-C

Vice President: John P. Schittone, Jr. SPHR

Secretary: Jennifer Aycock Motlow, JD

Treasurer: Nic Ourso/Peter Louviere

 

Brent W. Allain, Jr. MD

Kim Collier, LDN, RD

Megan Harris, MD

Peter Louviere, CPA

Mark Manchester

Meredith Miceli, JD

Becky Oakman

Thomas Sandahl

Carolyn Scofield

Terry Singer

Patty Prats-Swanson

Jimmy Waters

 

Visit our website at www.alsalams.org


Ole Miss Phi Delts hosting 5K

run-1.png

Members of Phi Delta Theta at Ole Miss are holding a 5K Run on Saturday, May 3 in honor of Ralph Doxey Jr. Registration begins at 8:30 a.m. in front of the Student Union, and the race begins at 10 a.m.  Entry fees are $25 (plus a t-shirt) or $20. Proceeds will benefit The ALS Association Louisiana-Mississippi Chapter.

 

The sorority with the most participants will receive $1,000 for their philanthropy.

 

For more information, contact William Kneip at wbkneip@go.olemiss.edu or visit www.als5k.wordpress.com.

 

 

 


 

 

ALS Symposiums set for August

The ALS Association Louisiana-Mississippi Chapter will host ALS Educational Symposiums this month in Tupelo (August 26), Shreveport (August 27) and Covington (August 28). These symposiums are held to educate persons with ALS, caregivers and the healthcare community about ALS.  Topics will include physical therapy and occupational therapy needs for persons with ALS; exercising, transferring and body mechanics; the importance of seeing a pulmonologist; and the benefits of using a Trilogy. Lunch will feature a presentation by Janie Walters, a motivational speaker and suthor. This year’s symposiums are sponsored by Permobil, Peoples Health and Numotion. For more information, contact Frankie Erwin or (800) 891-3746, ext. 1. CEUs are available for Occupational Therapists, Physical Therapists and Assistive Technology Professionals. Topics will include seating and mobility considerations for progressive disorders; power seat functions; and power wheelchair driving skills.

 

 


 

ALS 2013 DC-263.jpg

ALS advocates head to Washington

The ALS Association Louisiana-Mississippi Chapter will again be advocating on behalf of the ALS community in May, which is also ALS Awareness Month. Since 2002, the chapter has helped to fund a trip for persons with ALS (pALS), caregivers and staff to Washington, D.C. for the National ALS Advocacy Day and Public Policy Conference. Visiting with Congressmen and women enables Louisiana and Mississippi pALS to build awareness of ALS while requesting federal support that can benefit everyone who has been touched by the disease. Next week, The ALS Association Louisiana-Mississippi Chapter will bring 17 people to Washington.

 

In Louisiana, ALS Awareness Day at the Louisiana State Capitol will be held on Thursday, May 15. Visit the chapter in the rotunda anytime from 10 a.m.-4:30 p.m. and help raise awareness of ALS among state legislators. Also on May 15, Senator Page Cortez will present the top three winners of “The Luckiest Man” essay contest before the state senate.

 

The ALS Association Louisiana-Mississippi Chapter has achieved significant milestones in its advocacy efforts on both a local and national level. In 2007, the chapter secured 150 Medicaid Community Choice Waiver slots dedicated for pALS – allowing them to bypass the typical three-year waiting list for certain services necessary for them to stay in their homes rather than in an institution.

 


jennifer and her dad.jpg

Volunteer of the Month

Starting in April, The ALS Association Louisiana-Mississippi Chapter began a new volunteer recognition program to thank those who give their time to further the chapter’s mission. April’s “Volunteer of the Month” was Jennifer Helminiak. Most recently, Jennifer volunteered her time in The ALS Association’s office to help the chapter prepare for its move across town to a new building. Jennifer’s employer has a program that allows staff to take a day off to volunteer at the non-profit of their choice. In addition, for the past four years, Jennifer has served as team captain for “Team Choker” with the Baton Rouge Walk to Defeat ALS. Jennifer lost her father to ALS. Thank you, Jennifer, for what you do to provide a better quality of life for people living with ALS!


 

 



peoples health louisiana logo newsletter

 

Peoples Health sponsors Care Services Program

Peoples Health has committed to be a Bronze Sponsor of The ALS Association's Care Services Program. Funds will go toward ALS Connections support groups in Baton Rouge, New Orleans and Covington as well as the ALS Symposium in Covington, set for August 26, 2014. 



Join the Walk to Defeat ALS planning committee!

Do you love the Walk to Defeat ALS? Join the planning committee, and be a part of making the big day happen. In May, the New Orleans walk committee meeting will be held on Monday, May 12 at 6 p.m. at Moreau Services; the Shreveport walk committee meeting will be held Tuesday, May 13 at 5:30 p.m. at Willis Knighton Pierremont; and the Lafayette walk committee meeting will be held Tuesday, May 27 at 5:30 p.m. at Our Lady of Lourdes. For more information, call Jamie Craig at (800) 891-3746, ext. 2 or e-mail jamie.craig@alsalams.org.


 

'ALS Connections' support groups begins in Tupelo

The ALS Association Louisiana-Mississippi Chapter will begin hosting its "ALS Connections" support group in Tupelo, Miss., beginning April 8. The meeting will be held on the second Tuesday of every month from 12-2 p.m. in the ground floor conference room at Longtown Medical Plaza, located at 4381 South Eason Blvd.

The chapter also hosts monthly support groups in Jackson and Gulfport, Miss., as well as Shreveport, Alexandria, Lafayette, Baton Rouge, Covington, and New Orleans, La. These groups serve as an outlet for persons with ALS and their loved ones where they can learn more about ALS, share information on living with the disease, and meet others who are on a similar journey.

For more information, call Brandi Nickles at (601) 364-3326 or Jasmyne Searcy at (662) 377-7215 or e-mail brandi.nickles@alsalams.org.


"Cure ALS" pins for sale       cure als pin

Purchase a silver "Cure ALS" pin for $35 -- raise awareness of ALS while supporting the programs of The ALS Association Louisiana-Mississippi Chapter. For information, call Frankie Erwin at (225) 343-9880, ext. 1 or e-mail frankie.erwin@alsalams.org.


Deadline approaches for 'The Luckiest Man' essay contest

The annual Lou Gehrig essay contest is underway in Louisiana, with all eighth graders in the state invited to participate. This education and awareness effort, hosted by The ALS Association Louisiana-Mississippi Chapter, asks students to answer the question, "Why did Lou Gehrig consider himself to be 'The Luckiest Man?'" The deadline for entries (500 words, typed) is April 21. Essays will be judged on spelling, grammar, and content, which should include information about ALS as well as Lou Gehrig. The top three winners will be recognized at the Louisiana State Capitol on May 15. For more information, call Jamie Craig at (225) 343-9880, ext. 2 or e-mail jamie.craig@alsalams.org.


Mississippi Gulf Coast Walk to Defeat ALS close to goal of $40,000

The third annual Mississippi Gulf Coast Walk to Defeat ALS was held in Gulfport on March 15, with 400 participants. The day included food, music from DJ Lacee, entertainment by Sue's Southern Cloggers and awards. Chuck's Crew took the prize for Top Fundraising Team, Biggest Family & Friends Team, and Best T-Shirt Design. Team Lamber was named Top Rookie Team. So far, the event has raised $37,894.

Thanks again to the event sponsors: Permobil, Numotion, Singing River Health System, Encore Rehabilitation, Home and Bath Solutions, Coca-Cola, St. Charles Borromeo Catholic School, Richie Grant and Hattiesburg Medical. Thanks also to Frank Ladner, Richard Nickles and Shawn Paretti for preparing gumbo and chicken fingers.

Check the walk's progress at www.walktodefeatals.org.



Huffstickler Family Hosts 4th Annual Tuff Huff Tournament

20120330_baseball_33.jpg

Mark your calendars! The date for the Shreveport ALS 4th annual Tuff Huff softball tournament will be on June 7 and 8. The event is in the planning stages, and the family of Danny Huffstickler, a former patient who lost his battle to ALS, wants your input and ideas on how it can improve the tournament. If you are interested in entering a team or would like to join the planning committee, contact Paige Huffstickler Kottenbrook at pahuff212@yahoo.com. The tournament proceeds will benefit The ALS Association Louisiana-Mississippi Chapter.



Lou Gehrig essay contest winners recognized at the Mississippi State Capitol

2014 MS essay winners 

Three eighth graders were recognized at the Mississippi State Capitol on Thursday, February 6 for their participation in our Chapter’s essay contest. Their essays were deemed the top three in the contest, answering the question “Why did Lou Gehrig consider himself the ‘luckiest man?’”

All of the top three winners were from Long Beach Middle School. The first-place winner was Katherine Rorabaugh; J.T. Tripp was the second-place winner; and Unity Feldmeyer placed third.

Representative Tom Miles presented the students before the legislators, and all members received copies of the winning essays. The students also received cash prizes.

This annual essay contest is an opportunity to educate children on the legendary New York Yankee, Lou Gehrig, who was diagnosed with ALS in the prime of his record-setting baseball career. Through it all, Gehrig presented a public face of courage, perseverance and humility. The winning essays highlighted both Gehrig and ALS, which ultimately became known as Lou Gehrig’s disease.

Currently, the same essay contest is underway for all eighth graders in Louisiana. The top three winners of the Louisiana contest will be recognized at the Louisiana State Capitol on May 15, which is Louisiana’s ALS Advocacy Day. For more information about the contest, please contact Jamie Craig at jamie.craig@alsalams.org

 


Southwest Airlines Raffle


southwest 

Congratulations Jules Ellender, the winner of the ALS Association Louisiana-Mississippi Chapter’s raffle ticket drawing. On February 14, Jules won two Southwest Airlines roundtrip tickets to be used between two cities within the continental U.S. Thank you to everyone who participated in the raffle.


Gulfport Walk Update

Walk to Defeat 2011 no ALSA

It's not too late to register for the Gulfport Walk to Defeat ALS! This year's walk will take place at Jones Park on March 15, with registration beginning at 9 a.m. and the walk starting at 10 a.m. So far, we’ve raised $5,385 of our goal of $40,000. Twenty-one teams have already signed up and we’re expecting a great turnout. The event includes music, food and children’s activities. There is a $75 t-shirt minimum this year. To register, visit www.walktodefeatals.org.

 


 


 

ALS Awareness Day and Military Night at Zephyr Field

zephyrs 2012

Did you know that veterans are twice as likely to develop ALS?  The ALS Association Louisiana-Mississippi Chapter has partnered with Minor League Baseball to bring awareness to ALS and its impact on the military.

ALS Awareness Day and Military Night will be hosted at Zephyr Field on Friday, June 6. In addition to bringing awareness to ALS and the military, the night will also celebrate the 75th anniversary of Lou Gehrig’s famous farewell speech. This night is an opportunity to promote the National ALS Registry, which may help scientists learn what causes ALS, why veterans are at greater risk of the disease and ultimately help find a treatment for ALS.

In Gehrig’s speech, he thanked fans for their continued support and told them he considers himself “…one of the luckiest men on the face of the earth.”  We hope the night will be an exciting experience for all who attend.

The ALS Association is currently working to provide tickets free-of-charge to all patients and caregivers. If you are interested in purchasing a ticket, you may do so through our chapter. Tickets are $12, and you can contact Chelsea Moreau by email at chelsea.moreau@alsalams.org or by phone at 225-343-9880, ext. 6. 


Manchester Project Announces First Annual Mark's Madness

Mark's Madness.jpg

The Manchester Project proudly announced the first annual "Mark's Madness," an event that aims to promote local awareness, activism and education and raise funds to help support The ALS Association Louisiana-Mississippi Chapter, Team Gleason and The Manchester Project. 

Mark Manchester was diagnosed with ALS in July 2011. Mark is determind to inspire others by continually pursuing a positive and inspirational attitude about life. Despite his diagnosis, Mark continues to challenge the works of technology and science to identify and implement the most promising developments toward new treatments and a cure. Mark has taken on the motto "NO WHITE FLAGS."

The event will take place from 3-10 p.m. on Saturday, March 8. Performances will include The Chee-Weez, JJ Callier, Floyd Brown, Big Pokey, Greg Martinez, Johnny Pat and Al Kilvo and Vinnie Whitehead. Food and beverages will be provided - no ice chests, please.

Tickets are on sale now and can be purchased here or at the gate for $20. Tickets for children 12 and under are free. 


 


 

2012 Dodge Van for Sale

Saltzman van

 

This 2012 Dodge Grand Caravan is for sale and it is in great condition. The van has only 24,500 miles on it and the asking price is $27,000. It has also been completely modified for wheelchair usage and carries a driver, three passengers and one wheelchair person. If you are interested in receiving more information, contact Delphine Saltzman at 337 652-1850.

 


  

 

 


 

 Red, White & Sneaux a success

 rodney frisard iron horse

 

 

The first Red, White & Sneaux – The ALS Association Louisiana-Mississippi Chapter’s newest fundraiser – was held on January 21 at Boudreaux’s in Baton Rouge. The event was a success, raising nearly $60,000 for programs that provide care and support for people living with ALS.

More than 200 people gathered for a wine tasting, music from The John Gray Jazz Trio, live and silent auctions, and a raffle for an Instant Wine Cellar.

LSU Baseball Coach Paul Mainieri served as honorary chair and presented The ALS Association’s first Iron Horse Award to Rodney Frisard. JPMorgan Chase and The Allain Family were also recognized for their service and support of The ALS Association Louisiana-Mississippi Chapter.

 


‘The Luckiest Man’ essay winners announced in MS

 2014 MS essay winners

All top three winners of The Luckiest Man essay contest this year in Mississippi were students at Long Beach Middle School. This year, the contest – which is an ALS education and awareness effort by The ALS Association – was open to eighth graders, who were asked to answer the question, “Why did Lou Gehrig consider himself ‘The Luckiest Man’?”

The first place winner was Katherine Rorabaugh, second place went to J.T. Tripp, and the third place winner was Unity Feldmeyer. They were recognized at the Mississippi State Capitol on February 6.

The contest is now open to all eighth grade students in Louisiana. The deadline for submissions is April 21. The top three winners will be presented at the Louisiana State Capitol on May 15. For more information, call Jamie Craig at (225) 343-9880, ext. 2 or e-mail jamie.craig@alsalams.org.


Clevy David & Christy Roy Memorial Bass Fishing Tournament coming up

 

fish 

 

The fourth annual Clevy David & Christy Roy Memorial Bass Fishing tournament will be held on March 1 on False River. The morning starts at the Morrison Parkway Boat Dock at first light with the tournament ending at 3 p.m. First place winner is guaranteed $1,000. For information about entry fees, call (225) 505-6681 or (225) 638-8584. All proceeds benefit The ALS Association.

 

 

 

 


 

Student places first with ALS awareness project in Social Studies Fair

katie louviere

 

Katie Louviere took first place at her school’s Social Studies Fair with her project, which focused on ALS. She will proceed to the regional competition in March. Katie lost her grandfather, Charles Louviere, to ALS in 2012. Katie is a fifth grade student at Cut Off Elementary, and she was also recently named Elementary Student of the Year for Lafourche Parish.


 

 

January brings "Red, White & Sneaux"

The ALS Association's new fundraiser, "Red, White & Sneaux," will be held on Tuesday, January 21 at Boudreaux's in Baton Rouge, La. The event will include LSU Baseball Coach Paul Mainieri as honorary chair, a wine tasting, food, drinks, live and silent auctions, a raffle and music.  For information about sponsorship or to donate an item for auction, please contact Jamie Craig at (225) 343-9880, ext. 2 or e-mail jamie.craig@alsalams.org. Click here to purchase tickets.

 

 

 



 

Mississippi Gulf Coast walk -- March 15 in Gulfport!

walk rwb registered

 

 

 

Join The ALS Association Louisiana-Mississippi Chapter at the third annual Walk to Defeat ALS on the Gulf Coast in Mississippi. The event will take place on Saturday, March 15 at Jones Park in Gulfport. For more information, call Chelsea Moreau at (225) 343-9880, ext. 6 or e-mail chelsea-moreau@alsalams.org. Register for the walk here.

 


 '
The Luckiest Man' essay contest begins in Mississippi

Lou w-bat hi-rescrop.jpg

 

 

 

The ALS Association Louisiana-Mississippi Chapter's annual essay contest will be held again this year in Mississippi, with the top three winners to be presented before the state legislature in February. This awareness effort will give Mississippi eighth graders the opportunity to learn more about ALS while sharing their thoughts on why Lou Gehrig was "The Luckiest Man." For more information, call Jamie Craig at (225) 343-9880, ext. 2 or e-mail jamie.craig@alsalams.org.

 

 

 

 


 

Car Show to be held in New Roads

 

 

A Car Show benefiting The ALS Association will take place in New Roads, La., on Saturday, December 7 in the Winn Dixie parking lot. Registration and line-up begins at 9 a.m. Registration is $20 for the first vehicle and $10 for the second vehicle. The event, which ends at 3 p.m., will include music from Big Brown, an auction, a raffle and a "chicken drop." Jambalaya will be for sale at $5 a bowl. The event is being held in memory of Christy Roy and Clevy David. For more information, contact Trisha Hodges at (850) 293-1316 or Mona David at (225) 718-3509.

 

 

 

 


 

2013 walk t-shirt

Thank you for a record-breaking Walk to Defeat ALS in 2013

 

 

The ALS Association Louisiana-Mississippi Chapter would like to thank everyone who contributed to the success of the 2013 Walk to Defeat ALS -- in Gulfport, Lafayette, Shreveport, New Orleans, Jackson and Baton Rouge. The walk program is the biggest fundraiser and best awareness tool for the chapter.

 

Funds are still coming in, but the 2013 walk program is expected to top $500,000. Thank you to the  corporate sponsors, corporate teams, in-kind sponsors and vendors for contributing to the success of this program.

 

LAFAYETTE: Corporate sponsors included Blue Cross and Blue Shield of Louisiana, Numotion, Permobil, Our Lady of Lourdes, BETA Land Services, Raising Cane's and Lafayette Physical Rehab.

 

SHREVEPORT: Corporate sponsors included Omni Industrial Solutions, Numotion, Permobil, Blue Cross and Blue Shield of Louisiana, Velocity Care, and Mary Elise McWilliams, M.D.

 

NEW ORLEANS: Corporate sponsors included Blue Cross and Blue Shield of Louisiana, HUB International, Guardian Hospice, Numotion, Permobil, Pride Mobility, Quantum Rehab, Capital One, Raising Cane's and Valero St. Charles Refinery.

 

BATON ROUGE: Corporate sponsors included Wright & Percy Insurance, BancorpSouth, JPMorgan Chase, The Celtic Group, Celtic Media Centre, Blue Cross and Blue Shield of Louisiana, The Boo Grigsby Foundation, Dow Louisiana Operations, EATEL, Our Lady of the Lake Regional Medical Center, PreSonus Audio Electronics, Albemarle Foundation, Permobil, Numotion, Planche Politz Ledet, Raising Cane's, LUBA Workers' Comp and Transformyx.

 

JACKSON: Corporate sponsors included Grantham Poole CPAs, Numotion, Blue Cross and Blue Shield of Mississippi, Canizaro Cawthon Davis, Mid-State Construction, Pride Mobility, Quantum REhab, Permobil, St. Dominic Health Services, Cosmich Simmons & Brown and Walmart -- Pearl, MS.

 

 

 

 


 

November is National Family Caregivers Month

November is National Family Caregivers Month, and The ALS Association wishes to thank the special people who serve as family caregivers. Caregivers give of themselves around the clock to support the significant physical, developmental or emotional needs of spouses, children, parents and other loved ones who require daily assistance. The theme for this year’s campaign is “Family Caregivers - Now More Than Ever!”

Caregivers of people with ALS face particular challenges because of the devastating nature of the disease. Sharon Greenman, whose husband Wallace Swofford was diagnosed with ALS in April 2011, says that “the toughest thing about being an ALS caregiver is that you know what the ultimate outcome is going to be,” and that coming to terms with that outcome is difficult for all involved.  “You know are losing your spouse” or other loved one, she explains. “You are basically losing everything.”

Louise Hensley, who has been caring for her husband Lynn since his ALS diagnosis in September 2010, says that she never “thought much about what being a caregiver means” until she experienced the changes brought on by Lynn’s ALS. “What was shared by two is now handled by one,” she explains.

Often willingly undertaken out of love and devotion, caregiving can exact an emotional toll and adversely affect the caregiver’s physical and psychological health over time. As a result, caregivers often neglect to take proper care of their own physical and emotional health. Hensley, for example, says that her children sometimes chide her for eating nothing but cereal. Now that her husband must eat through a feeding tube, she no longer sees a reason to cook unless she has guests.

Although her family and friends are supportive and caring, Hensley writes, “I don’t think it enters their minds how isolated we sometimes feel.”

Greenman says that friends and family can support caregivers in a number of ways. “When it’s possible, give the primary caregiver a break from their responsibilities and don’t be afraid to give them a reason to laugh,” she suggests. “Take them to a movie or dinner. Ask, ‘Can I take your car in to have the oil changed?’” Household chores that seem insignificant to others can become a burden to caregivers who provide around-the-clock assistance to their loved ones with ALS.  Even changing a hard to reach light bulb or picking up a few groceries can help.

Finally, Greenman says, simply let caregivers know that you are thinking of them, and that you appreciate them. “Caregivers are there in the background” and can feel “taken for granted,” she explains. A sincere gesture of appreciation – no matter how large or small – makes a difference.

The ALS Association is grateful to the thousands of people who take care of family members and loved ones with ALS. To support caregivers, The ALS Association offers helpful resources for caregivers at http://www.alsa.org/als-care/caregivers/caregivers-month/.

 

 

 

Resources include caregiving tips and hints, information on coping with the demands of caregiving, respite care, and more. Additionally, The ALS Association will host a webinar for caregivers about how they can benefit from assistive technology on November 18. Login information for the webinar is available at http://www.alsa.org/als-care/caregivers/caregivers-month/webinars.html.

 

 

 

 

 

If you know a caregiver who deserves a special thank you, please send them an e-card during November to show your support. For each e-card sent, Permobil, the world’s leading manufacturer of power wheelchairs, will donate $10 with a $25,000 maximum donation. 

To learn more about what you can do to join the fight against ALS, visit the “Advocate” section of The ALS Association website at www.alsa.org/advocacy.

About National Family Caregivers Month

The National Family Caregivers Association (NFCA) began honoring family caregivers in 1994 during Thanksgiving week. Later, November was named National Family Caregivers Month. More than 65 million Americans fill the role of family caregivers, providing an estimated $375 billion in unpaid care to their relatives each year.

 

 


 


Veterans and ALS -- visit the Wall of Honor

Did you know that our military heroes are twice as likely to be diagnosed with ALS? In honor of Veterans Day, visit the Wall of Honor, where you can see the faces of veterans with ALS and read their stories of courage at http://www.alsa.org/advocacy/veterans/. If you know a veteran with ALS or a veteran who has been lost to ALS, help tell their story by sharing it on the Wall.

 



The Luckiest Man essay contest to begin in Mississippi

The ALS Association Louisiana-Mississippi Chapter's annual essay contest will be held again this year in Mississippi, with the top three winners to be presented before the state legislature in February. This awareness effort will give Mississippi eighth graders the opportunity to learn more about ALS while sharing their thoughts on why Lou Gehrig was "The Luckiest Man."

 


33 Variations The world's greatest composer ... a 200-year-old mystery ... and the moments of beauty that can transform a life.

33 Variations production to benefit The ALS Association

 

 

"Bristles -- like Beethoven's music -- with intelligence, emotional power, moral gravity, surprising humor and piercing honesty." -- Chicago Reader

 

 

 

Join The ALS Association at 7:30 p.m. on Friday, Sept. 20 at  the Contemporary Arts Center in New Orleans for a special production of 33 Variations. Proceeds from this performance will benefit The ALS Association Louisiana-Mississippi Chapter and Team Gleason. A reception, with refreshments from Whole Foods Market, will take place after the play. Tickets for this benefit performance are $75 and can be purchased here. The ticket price includes the play, a gift bag and entrance to the reception. 

 

 

 

The Tony Award-nominated play by Moises Kaufman tells the story of a woman living with ALS who is driven to solve one of classical music's enduring riddles -- the mystery behind Beethoven's Diabelli Variations -- as she battles the progression of her disease and struggles to gain insight into the other mystery in her life: her daughter. 33 Variations, produced by Southern Rep in partnership with MESA Production Company, will run from Sept. 11 through Sept. 29. For the Sept. 12 performance, pALS and their caregivers have the opportunity for complimentary tickets -- while supplies last. Call (504) 522-6545 or e-mail boxoffice@southernrep.com for more information.

 


hooters logo

Baton Rouge Walk to Defeat ALS kick-off set for Friday, Sept. 6

The kick-off event for the Baton Rouge Walk to Defeat ALS will be held on Friday, Sept. 6 at Hooters at 5120 Corporate Blvd. Join us at 6 p.m. for wings, drinks, fun and prizes.

 

 

 

For more information, call Chelsea Moreau (225) 343-9880, ext. 6 or e-mail chelsea.moreau@alsalams.org.

 


A gift that anyone can afford

A bequest is a wonderful way to communicate a heartfelt remembrance. It can serve as a loving testament to the people and institutions that matter most to you. If supporting the mission of The ALS Association is important to you, we invite you to consider a bequest through your will or living trust to The ALS Association Louisiana-Mississippi Chapter. Your gift will help provide compassionate care to people living with ALS, advance public policy, and fund research for treatments and a cure.

 

The benefits of a bequest:

-- You retain control of your assets during your lifetime and can change your beneficiaries at any time.

-- Bequests can be arranged to provide for loved ones and for The ALS Association Louisiana-Mississippi Chapter.

-- If you already have a will, a simple amendment -- without revising the entire will -- can add a provision that includes The ALS Association Louisiana-Mississippi Chapter.

-- Regardless of the size of your gift, your contribution will help ensure we can continue to help people with ALS and their families.

 

For more information, call Jamie Craig at (225) 343-9880, ext. 2 or e-mail jamie.craig@alsalams.org.

 


 

New Orleans walk teams compete for prizes

New Orleans walkers stepped into high gear during the last five days of August. During "Team Week," 36 teams competed for prizes including a two-night stay at the Beau Rivage in Biloxi. The grand prize was won by Theresa's pALS, led by Denise Lambert, which raised more than $3,000. Overall, 130 new participants have joined the Walk to Defeat ALS, and the total amount raised during Team Week topped $8,000. Baton Rouge Team Week will take place September 9-13.

 

 


 

2013 walk t-shirt

 

"Thank you" to our Walk to Defeat ALS sponsors!

 

The ALS Association Louisiana-Mississippi Chapter and the pALS and families we serve are so grateful for support from these businesses:

HUB International

 

Raising Cane's

 

 

 

Grantham Poole

 

 

Our Lady of Lourdes Regional Medical Center 

 

Planche Politz Ledet 

 

Dow Louisiana Operations

 

Cosmich, Simmons & Brown

 

 

Beta Land Services

 

Our Lady of the Lake Regional Medical Center

 

 

Numotion

 

 

Mid-State Construction

 

 

St. Dominic Health Services

 

 

Omni Industrial Solutions

 

 

Wright & Percy Insurance

 

BancorpSouth

 

 

Blue Cross and Blue Shield of Louisiana

 

 

The Celtic Group

 

 

Celtic Media Centre

 

 

JPMorgan Chase Bank

 

 

Blue Cross and Blue Shield of Mississippi

 

 

Permobil

 

 

Pride Mobility

 

 

Quantum Rehab

 

 

EATEL

 

 

Valero St. Charles Refinery

 

 

Capital One Bank

 

 

Albemarle Foundation

 

 

Velocity Care

 

 

LUBA Workers' Comp

 

 

 

 

In-kind donors include:

 

Whole Foods 

 

 

Hooters of Louisiana


 

NEWS ARCHIVES:

Zephyrs game raises funds and awareness for ALS

 

The New Orleans Zephyrs hosted “ALS Night” on Friday, July 19.  This year, The ALS Association welcomed 30 pALS and 214 people to the event. The evening included several unforgettable moments: Al Eckhardt threw the first pitch, Rodney Frisard sang the national anthem and Mark Manchester closed the night by reading an excerpt from Lou Gehrig’s “Luckiest Man” speech.

 

The event raised nearly $1,200 for the Louisiana-Mississippi Chapter.


 

hooters logo

New Orleans Walk to Defeat ALS kicks off with party and prizes

 

Join the excitement and mark your calendar for our New Orleans Walk to Defeat ALS TEAM WEEK! Team Week is an exciting opportunity for teams to rally together to make fundraising progress and earn awesome prizes at the same time! Fitting with the spirit of competition and the upcoming seasons for the LSU Tigers and the New Orleans Saints, our Team Week theme this year is football!

Our New Orleans Team Week will begin with a kickoff party at 6 PM on August 23, 2013 at the Metairie Hooters (4748 Veterans Blvd). Join us for a fun evening and some advance hints about the Team Week challenges to come! If you know you would like to attend, please visit the event page on Facebook to RSVP and to find more information.

Between August 26 and 30, your team captain will be notified of a daily special challenge each morning, which will require the help of every team member for success! Your team captain will let you know what you need to do each day, and we will announce the winner on our chapter's Facebook and Twitter accounts the following morning. If you have not registered your team yet, sign up today so you don't miss out on the chance to participate!

We are all together in the fight against ALS, but some fun competition between our teams will ensure that the New Orleans Walk to Defeat ALS reaches new heights in fundraising and awareness!


 

pALS benefit from support groups

Support groups exist entirely for persons with ALS, their families and their loved ones. These gatherings are a valuable tool for pALS to maintain control over their lives by giving and taking wisdom that comes from living with a devastating illness. The ALS Association Louisiana-Mississippi Chapter hosts support groups in Shreveport, Alexandria, Lafayette, Thibodaux, New Orleans, Covington, Baton Rouge, Jackson and Gulfport.

 

"It is so nice to go someplace and not have to explain your situation or ALS because everyone else there already knows and understands what you are going through," one pALS said.

Support groups are a forum to share information and practical experience as well as a safe place to allow your emotions to speak for you. These groups are also an educational gathering spot where speakers and caregivers address subjects of particular interest to families facing ALS. Topics have included communication devices, home health, respiratory equipment, speech therapy and more. We encourage you to visit a support group near you. For locations and dates, click here.

 

 

 


 

als untangled

 

 

"ALS Untangled" investigates treatment options

 

 

ALS Untangled is an online forum allowing anyone with a Twitter account to request that researchers investigate an alternative or "off-label" ALS treatment option. The site seeks to improve the scientific understanding of alternative ALS treatments through research to help people living with ALS and their families make informed decisions.

 

Twitter users can compose a tweet, or short Twitter message, containing their request for investigation and the term "@ALSUntangled" to notify the researchers of the request. The researchers will respond with another tweet informing the user that the request has been noted and added to the running list.

Visitors to the website can view the list of open requests and vote for the topics they'd like the researchers to investigate first. The website also features a list of completed investigations with detailed reports about the researchers' findings and their recommendations on future use of the treatment option.

If you're interested in learning more, visit http://www.alsuntangled.com.

 


 

LA-MS Executive Director responds to need for awareness

"When the hosts of the 'Mayhem in the AM' radio show in Atlanta mocked former Saints player Steve Gleason's battle with Lou Gehrig's Disease, they didn't just anger the ALS community, they sparked a conversation that obviously needed to happen," Kelly Hutson Viator, executive director of The ALS Association Louisiana-Mississippi Chapter, wrote.

 

Read more of her letter to the editor recently printed in The Advocate in Baton Rouge.


 

zephyrs 2012

 

Take me out to the ball game!

The ALS Association Louisiana-Mississippi Chapter will host its annual ALS Awareness Game with the New Orleans Zephyrs. The game, which will coincide with Military Night at Zephyr Field, will take place on Friday, July 18. Join us for America's favorite pastime while raising awareness of ALS. The night will include special promotions and giveaways. And, Rodney Frisard, a veteran living with ALS, will sing the national anthem.

 

Tickets are $12, and the purchase deadline is Wednesday, July 17. To purchase tickets online, click here.

Stay tuned for information on an ALS Awareness Game with the Mississippi Braves in Jackson!

 


 

 

 

baton rouge mustang

 

All Ford Show & Shine raises money for The ALS Association

Hollingsworth Richards Ford and the Baton Rouge Area Mustangers raised $400 for The ALS Association Louisiana-Mississippi Chapter recently at its All Ford Show & Shine car show. The 63-car event was held May 4 in Baton Rouge.

 

Kathy Pourciau has been a member of the Mustangers for more than 15 years, and she served as president of the organization for 10 years until her father was diagnosed with ALS in 2009. At that time, she stepped away from many outside obligations, including her leadership role with the Mustangers, to care for her father. She said the Mustangers donated the proceeds of the car show to a different nonprofit each year, and they chose The ALS Association this year because of her family's experience.

Pourciau described this year's event as "very successful" thanks to the generosity of the community. She said that throughout her family's time of need, the Louisiana-Mississippi Chapter's staff members "were always there at the drop of a hat, providing answers to our questions and support." She added, "Our experience with the chapter was positive, meaningful and helpful during a very difficult time for us."

 


 

Need help organizing a fundraiser for The ALS Association?

"What if your dollar ... or your friend's dollar ... or your co-worker's dollar was THE DOLLAR that put us over the top to identify the cause and cure for Lou Gehrig's Disease?"

 

This idea was the inspiration for a personal fundraising site called "One Dollar Difference." This online program provides free tools to those who want to organize events with funds going to The ALS Association.

From poker runs to tailgate parties to volleyball tournaments and everything in between, One Dollar Difference can make event planning and fundraising simple. After creating an event page, the organizer can customize it with text and images, access template e-mails to invite other participants, collect donations online, track fundraising progress and more.

For more information, visit the site here or contact Chelsea Moreau at chelsea.moreau@alsalams.org or (225) 343-9880, ext. 2.

 

 

 


 

chris munn afghanistan walk

 

Troop in Afghanistan supports Gulfport Walk to Defeat ALS

Though Chris Munn couldn't personally attend the Gulfport Walk to Defeat ALS on April 20, he still wanted to be a part of the effort. Stationed in Afghanistan with the U.S. Military, Munn gathered his troops to hold his own walk.

 

T-shirts were designed and ordered. A banner, signs, and ALS wristbands were shipped from The ALS Association's office in Louisiana. And a date was set: May 25. With a goal of $2,500, Munn sent up a prayer in honor of his friend back home living with ALS: Al Eckhardt.

"Right before I left for my deployment, Bro. Al told me of the walk in Gulfport. Being that I wasn't going to be here, I didn't want that to stop me from being able to walk or raise awareness and funds in Afghanistan," Munn said.

With all his hard work, Munn reached his goal of raising $2,500 for the Walk to Defeat ALS. Munn, a technical sergeant at Kandahar Airfield, is scheduled to come home in September.


"Tuff Huff" softball tournament back in Shreveport

If you'll be in the Shreveport area July 20-21, you won't want to miss the third annual "Tuff Huff" co-ed softball tournament. The event, which will be held at Southern Hills Park, will include concessions, a cookout, raffles, a silent auction, music and more.

 

The tournament is being held in memory of Danny Huffstickler, who passed away in February 2013.

 

For more information, send an e-mail to dannyhuffstickler@yahoo.com or call Dana Benton at (318) 470-6663.

 


 

"Thank you" to our Walk to Defeat ALS sponsors!

The ALS Association Louisiana-Mississippi Chapter and the pALS and families we serve are so grateful for support from these businesses:

Wright & Percy Insurance

BancorpSouth

Blue Cross and Blue Shield of Louisiana

The Celtic Group

Celtic Media Centre

JPMorgan Chase Bank

Blue Cross and Blue Shield of Mississippi

Permobil

Pride Mobility

Quantum Rehab

EATEL

Valero St. Charles Refinery

Capital One Bank

Albemarle Foundation

Velocity Care

LUBA Workers' Comp

 

In-kind donors include:

 

Whole Foods 

 

Hooters of Louisiana.

 


 


 

 

 

Louisiana students honored at state capitol

Three Louisiana  fourth graders were recognized at the state capitol on May 22 for their participation in The ALS Association Louisiana-Mississippi Chapter's annual essay contest. Their essays were deemed the top three among more than 700 entries in the contest, with the theme "Lou Gehrig -- Why did he consider himself the 'Luckiest Man?'" The winners are Dylan Taylor of St. Cletus School in Gretna, first place; Malaina Lafont of Cut Off Elementary in Cut Off, second place; and Addison Hebert of Our Lady of Prompt Succor in Alexandria, third place. The students were honored on the house side by Rep. Thomas Carmody, and they also had the chance to meet their local representatives. The students were recognized on the senate side by Sen. Page Cortez; they were also presented with certificates by their senators. In addition, the legislators received copies of the winning essays.

 

 


 

 

Gulfport Walk to Defeat ALS -- a huge success!

The second annual Walk to Defeat ALS in Gulfport, Mississippi, marched right past its goal, raising $32,232,52. The top fundraising team was Chuck's Crew, in honor of Chuck Breath, with $13,535. Ladner Kickin' ALS, honoring Steven Ladner, was close behind, with $10,440.

Thank you to all our PALS, their families and friends, and other supporters who made April 20 a great day. The walk kicked off with the colors presented by servicemen from Keesler Air Force Base, followed by the national anthem, sung by Rodney Frisard, a U.S. Army veteran living with ALS. Nearly 300 people participated in the walk around beautiful Jones Park.

Food was provided by the Harrison County Sheriff's Department, A&A Home Health Equipment, Coca-Cola, Winn Dixie, Sam's, Krispy Kreme, Starbucks and Buffalo Wild Wings. Thanks to Danger McQueen for ensuring that we had great music, and thank you to Zanne from Sugar Flowers Face and Body Art for facepainting.

Next up: the Lafayette Walk to Defeat ALS, set for September 28 at Girard Park. Other fall walks include events in Shreveport, New Orleans, Jackson and Baton Rouge. For more information, visit www.walktodefeatals.org.

 


 

Bistro Byronz to host ALS night in Shreveport

Join care services coordinator Sarah Spivey at Bistro Byronz on Line Avenue in Shreveport on Tuesday, May 28 from 5-9 p.m. 20 percent of your check will be donated back to The ALS Association. For to-go orders, Bistro Byronz will donate 10 percent.

 Visit www.bistrobyronz.com for more information.


 
Gulfport Walk to Defeat ALS

It's not too late to register for the Gulfport Walk to Defeat ALS. This year's walk will take place at Jones Park on April 20, with registration at 9 a.m. and the walk starting at 10 a.m. To date, the walk has raised $9,900, with an ultimate goal of $25,000. The top team as of April 1? "Ladner Kickin' ALS," with "Chuck's Crew" close behind. To register, visit www.walktodefeatals.org.

 

 


 

 

 

 

 

mississippi essay contest winners 2013

Lou Gehrig Essay Contest winners announced in MS

 The ALS Association Louisiana-Mississippi Chapter hosted its Lou Gehrig Essay Contest in Mississippi for the first time this year, inviting fourth graders from throughout the state to participate. The theme of the contest was "Lou Gehrig -- Why did he consider himself the 'Luckiest Man?'" The winners were Kevandrea Moore of Weddington Elementary in Greenville, first place; Luke Sanders of Forest Elementary in Forest, second place; and Kennedy Townsend of Weddington Elementary in Greenville, third place.

 

Senator Terry C. Burton presented the students before legislators at the Mississippi State Capitol on March 21.

The essay contest is an opportunity to educate children on the legendary New York Yankee, Lou Gehrig, who was diagnosed with ALS in the prime of his record-setting baseball career. Through it all, Gehrig presented a public face of courage, perseverance and humility.

 


 

 

 

 

 

 

 

2013 fishing tournament winners

Christy Roy & Clevy David Memorial Fishing Tournament

 

 

Buster Roy gathered family and friends again this year to host the third  annual bass fishing tournament in memory of his aunt, Christy Roy, and family friend Clevy David. The tournament, held March 2 on False River in New Roads, La., raised almost $3,000 for The ALS Association.

 

 

 

 

  

 sarah spivey    adam wyatt     

 

 

New staff in Shreveport and Jackson

 

 

Sarah Spivey has joined The ALS Association Louisiana-Mississippi Chapter's staff as a care services coordinator. She is working with PALS and their families in the northern half of Louisiana. Sarah brings more than five years of experience in the medical field, having worked with Dr. Mary McWilliams, a Shreveport neurologist.

 

 

Adam Wyatt has been named event coordinator for Mississippi. He will be working closely with the communities of Jackson and Gulfport to organize and promote the Walk to Defeat ALS. Adam is also building relationships throughout the state to build awareness of ALS and raise money for the support of people living with the disease in Mississippi.

 

 

 

Jackson restaurants support The ALS Association in April

 

 

Each Monday in April, Broad Street Bakery & Cafe in Jackson will donate 10 percent of its proceeds from drip coffee sales to The ALS Association Louisiana-Mississippi Chapter. On Tuesday, April 23, Sal & Mookie's hosts its Charity Pint Night, when all proceeds from the evening's featured beer will be donated to our chapter. The event, which includes live music, is from 5:30-7:30 p.m. Also in April, be sure to wine and dine at Bravo. A cork from every bottle of wine purchased this month will go into Bravo's "cork bucket." Two corks will be drawn, and the price of those bottles will be donated to our organization. The winners of the two corks that are pulled will be given a $25 gift card.

 

 

 

 

  

2013 cake auction

Cake auction raises nearly $3,000

 

 

Bonny Louviere hosted her annual "cake auction" at Lady of the Sea Hospital in Cut Off, La., on March 28. The event raised nearly $3,000 for Lou's Mission, a New Orleans Walk to Defeat ALS team in memory of her father-in-law, Charles Louviere. This sweet fundraiser included cakes, cookies, and more. One item was so desired that the winning bidder paid $250 to take it home.

 

 

 

Golf tournament set for April 26 in Hattiesburg

 

 

A group of students at University of Southern Mississippi are hosting the Drane-Ing Putts Charity Golf Tournament on Friday, April 26 at the Hattiesburg Country Club. The cost to enter is $500 per team ($125 per person) and includes golf, range use pre-tournament, two drinks and lunch. To register, contact Kyle Smith at kyle.s.smith@eagles.usm.edu or (251) 232-3064 or Greg Silvester at greg.silvester@eagles.usm.edu.

 

 

 

Basketball tournament held in memory of Johnny Simmons

 

 

The family of PALS Johnny Simmons organized a fundraiser in his memory on March 22 , with funds going to The ALS Association. A bake sale and a basketball tournament were held at Oak Hill Academy in West Point, MS. John Wesley Williamson, Mr. Simmons' grandson, said "Hopefully the money we raised will help the Association help someone with this disease the way y'all did for us." The event brought in $800.

 

 

 

All Ford Show & Shine to be held in Baton Rouge

 

 

Hollingsworth Richards Ford and The Baton Rouge Area Mustangers will host the All Ford Show & Shine on Saturday, May 4 at Hollingsworth Richards Ford on Florida Blvd. in Baton Rouge. The event begins at 8 a.m. with an awards ceremony at 2 p.m.The entry fee is $20 ($25 on the day of the show). For more information, call Cherie at (225) 364-9862 or e-mail batonrougeareamustangers@gmail.com.

 

 


 

 

 

Fire & Ice gala held in Baton Rouge

 

 

The fourth annual Fire & Ice gala was held at the Renaissance Hotel in Baton Rouge on Jan. 19, welcoming more than 250 attendees – including 12 PALS.

 

The event was a success, raising more than $85,000 to help support The ALS Association’s mission of improving life for those living with ALS.

 

The night included cocktails, a seated dinner, silent and life auctions, and a raffle drawing for two roundtrip tickets on Southwest Airlines. Judith Allain was the lucky winner.

 

LSU Baseball Coach Paul Mainieri served as honorary chair, and his support helped secure a popular auction item: A Bat Boy/Bat Girl Experience at Alex Box Stadium. Coach threw the crowd a curve ball when he offered a bonus during the live auction – a private tour of Alex Box.

 

Other auction items included a specially commissioned painting by artist Eddie Mormon, a football signed by Drew Brees, a charter fishing trip, a VIP tour of LSU Football Operations, a trip to Napa Valley and a beautiful pearl and gemstone necklace by Barbara Bixby.

 

The program included a photo tribute to PALS, a “paddle raise” to support the chapter’s respite care program, and recognition of special friends of The ALS Association: Wright & Percy Insurance, the Credit Bureau of Baton Rouge Foundation, Kevin and Kim Kelty, and Avery Vodanovich.

 

 


 

 

 

ALSA van heads to the Super Bowl

 

Thanks to the generosity of ALS families and the Credit Bureau of Baton Rouge Foundation, The ALS Association has a transportation program that includes two wheelchair-accessible vans. Typically, the vans are used to transport PALS and their caregivers to the ALS Multidisciplinary Clinic. Recently, the chapter received a special request.

When Team Gleason needed help transporting PALS visiting New Orleans for the 2013 Super Bowl, The ALS Association was happy to oblige. At press time, board member Terry Singer is readying the van to provide transportation for three special PALS: a woman from New Mexico who wanted a trip to the Super Bowl as her “extraordinary adventure” with Team Gleason; Steve Saling, who helped build the Steve Saling ALS Residence in Massachusetts; and O.J. Brigance, former NFL star who now consults with the Baltimore Ravens.

Look for photos in the next e-newsletter!

 


 

 

Kevin Kelty Garden planted in New Orleans

On January 17, The ALS Association staff had the honor of attending the unveiling of the Kevin Kelty Garden, located outside of the Team Gleason House for Innovative Living at St. Margaret’s Skilled Nursing Residence in New Orleans. The home, only the second of its kind, will enable people living with ALS and other neuromuscular diseases to live more independently.

The residence’s key feature is technology, which former New Orleans Saints player Steve Gleason believes is the answer to the limits of ALS. Chase also believed in the project and donated $350,000 to help fund the technology after COO Lois Backon heard Gleason speak at the Social Innovation Technology Summit at the United Nations last May.

 

Upon entrance to the residence, visitors walk through the beautiful Kevin Kelty Garden, named after the former president of Chase in Baton Rouge. Kelty said that “nature makes him feel closer to God” as he addressed the crowd of friends, family and former colleagues who arrived in New Orleans early that morning to plant the garden. A plaque for the garden was presented by his friends Linton Naquin, Dee Richard and Jeff Gould.

 

 

Later, a press conference was held to provide more information on the residence. The event included words from Chase Chairman Todd Maclin, Steve Gleason and Drew Brees.


 


 

 

 

Essay contest to be held for fourth graders

Fourth grade students in Louisiana and Mississippi will be invited to participate in The ALS Association Louisiana-Mississippi Chapter’s annual essay contest, which is part of the chapter’s ALS Awareness Month activities.

 

 

 

The assignment is to write an essay on the topic: “Why did Lou Gehrig consider himself the ‘Luckiest Man?’” The writers of the top three essays will have the chance to be recognized at the Louisiana State Capitol and the Mississippi State Capitol in the spring. The writer of the top essay in each state will receive a prize and a pizza party for his or her class.

 

 

 

If you know a fourth grade class that would like to participate, please e-mail Jamie Craig at jamie.craig@alsalams.org.

 

 

 


 

 

 

Join us for the Fire & Ice gala

 

 

The fourth annual Fire & Ice gala will be held at the Renaissance Hotel in Baton Rouge on Saturday, Jan. 19. The event begins at 6 p.m. The night will include cocktails, a seated dinner and a tribute to pALS. The program will also include recognition of several loyal supporters of the chapter. This year's honorees are Kevin and Kim Kelty, Wright & Percy Insurance, the Credit Bureau of Baton Rouge Foundation, and Avery Vodanovich.

 

 

 

The evening will feature a silent auction and a live auction led by professional auctioneer Brian Fourroux. After dinner, guests can dance the night away to the sounds of Artemis, a seven-piece band that plays classic rock, blues, country, funk and more.

 

 

 

Tickets are $125 for an inpidual, $225 for a couple and $1,000 for a table of 10. Persons with ALS are invited to attend as guests of The ALS Association Louisiana-Mississippi Chapter.

 

 

 

For tickets, call (225) 343-9880, ext. 2 or e-mail jamie.craig@alsalams.org.

 

 

 

Deadline for "Friends of Pam" scholarship is Jan. 12, 2013

The Friends of Pam Scholarship was created in honor of Pam Callahan, who lived with ALS from 2006 until her death in February 2012. The scholarship fund was founded to assist dependents and primary caregivers of ALS patients who plan to continue their education in college or vocational school programs. Graduating high school seniors, current high school graduates and current undergraduates can apply to receive a scholarship of up to $5,000. Visit the Friends of Pam scholarship website at http://sms.scholarshipamerica.org/healinwheels to learn more.

 

 

 

 

Gulfport Walk to Defeat ALS set for March 2, 2013

 

 

Join The ALS Association at the Walk to Defeat ALS in Gulfport, MS, on Saturday, March 2, 2013 at Centennial Plaza. Register your walk team at www.walktodefeatals.org. To volunteer, call (800) 891-3746, ext. 2 or e-mail jamie.craig@alsalams.org.

 

 

 

 

 

 

Team Gleason provides fishing adventure to local PALS!


Below is an email that the chapter received from Ben Laws, a volunteer who took an ALS family out on a Fishing trip1.jpgfishing adventure. The chapter is grateful to Mr. Laws for his generosity in providing a wonderful day to the family.

 

     Greg, Ferrall, Garrett and I had a great fishing trip on Sunday.  I am attaching photos and will send more separately.  The weather was wonderful although a bit cold on the run out early in the morning.  I hope you can see what a great day it was in the photos.  We caught lots of specs and a few reds.  As always we missed as many as we caught.  Actually more I think.    

     Greg and Ferrall were a pleasure to meet and fish with.  Lots of great stories were told and many memories made.  Ferrall caught the smallest spec I have ever seen on a hook.  Not really sure how it was possible (should have taken a photo).  In fact he caught several small ones and I started calling them "Ferrall fish".  He also caught the nice red and several large specs.  I would have to say he won the fishing trophy for the day (that is if we had one). 

     My son Garrett really enjoyed the trip and is quite anxious to make another.  He could not stop talking about Mr. Greg after we dropped them off.  He was amazed at his wonderful disposition and good spirit.  Greg really is amazing when you think about his finding out about ALS just this past August.  The trip meant more to Garrett and I than any of you will ever know.                

 

Thanks again to everyone for all the help in making these trips possible.

 

Ben Laws 

 

 

 



The ALS Association Receives Substantial Research Donation


The ALS Association received more than $34 thousand dollars from Delta Beta Sigma. The national high school sorority’s donation will fund research towards a cure for Lou Gehrig’s disease.

Delta Beta Sigma

The ALS Association Louisiana-Mississippi Chapter accepted the contribution on behalf of the national organization. The chapter’s Director of Development and Community Relations Jamie Craig secured the donation from Delta Beta Sigma Editor-in-Chief Whitney Chillingworth at the sorority’s annual convention in New Orleans. Each year the sorority chooses a different organization for their eight chapters to participate in a National Charity Project.

 

Amyotrophic Lateral Sclerosis (ALS) is a motor neuron disease. Although the cause of ALS is not completely understood, the last decade has brought a wealth of new scientific understanding about the disease that provides hope for the future.

The ALS Association has committed more than $58 million to find effective treatments and a cure for Lou Gehrig’s Disease. Global research effort has helped increase the number of scientists working on ALS, advanced new discoveries and treatments, and has shed light on the complex genetic and environmental factors involved in ALS. 

For more information on how to donate or volunteer in the fight to defeat ALS, please visit www.alsa.org or alsalams.org.


 

 

 

Walk to Defeat ALS® returns to Shreveport

 

The ALS Association Louisiana-Mississippi Chapter wrapped up its spring walk season with the Walk to Defeat ALS in Shreveport on May 5. More than 240 people gathered at Betty Virginia Park to join in the fight against ALS.

 

To date, the Shreveport walk has raised $14,769 with the dedicated support of 15 teams, including America’s Sweethearts, Charlie’s Angels,Huffstickler.jpg Darlene’s Darlings, For a Million Summers, Kenneth’s Kruisers, LIARS, Making Strides with Danny’s Pride, My Support Peoples, Steve’s Stars, Team Jackie, Team LeMay, Team Leah, Team Waits, UNITE 2012 and Walk-n-Roll for JD.

 

Team Waits was the top fundraising team, with $2289, with Rock-n-Roll for JD and My Support Peoples coming in a close second and third. Team Jackie took the spot of most walkers, with 75!

 

Thank you to all those who helped organize the walk: Philip LeMay, Malissa LeMay, Jimmy Roberts, Mickie Roberts, Dana Haynes, Kyle Cummings, Gary Branton, Cara Waits, Billy Smith and Becky Smith.

 

The chapter is also grateful to our MC, Crystal Whitman; DJ Brandon Riffel; Avery’s Catering, Garison Electric Co., Ayers Career College and Kentwood Springs.

 

 

 

 


 

Third annual Fire & Ice gala held at the Renaissance Hotel

The third annual Fire & Ice gala, held April 21 at the Renaissance Hotel in Baton Rouge, was a huge success. With the generosity of our sponsors, donors and guests, this year’s gala raised more than $86,000 for The ALS Association Louisiana-Mississippi Chapter.

 

This year’s gala began with a special video “welcome” from LSU Baseball Coach Paul Mainieri, former Fire King; who was in South Carolina with the Tigers. The program was led by masters of ceremonies Lee Feinswog of “Sports Monday” and Carolyn Scofield of Fox 8 in New Orleans.

Honorees included Custom Healthcare, The Huey and Angelina Wilson Foundation, and the Donald Mayeaux family – all were recognizedharveys.jpg for their loyal support of The ALS Association and the fight against ALS.

Thank you to our wonderful volunteer committee which includes Carolyn Scofield, Claire Drummond, Claire Manchester, Dawn Love, Dawn Pitkin, Dee Richard, Erica Allain, Jennifer Durham, Kim Collier, Melissa Parmelee, Patty Prats-Swanson, Tina Cornwell and Matt McAlister.

Guests were treated to hors d’oeuvres, an open bar and a delicious dinner of New York strip steak accompanied by BBQ shrimp. Entertainment was provided by Artemis, which played everything from Van Morrison to Motown to Lynyrd Skynyrd, and the crowd stayed on the dance floor until 11 p.m. Hot items at the auction included a guided overnight fishing trip in Plaquemines Parish, a limited edition Louisiana Bicentennial Ruger rifle, the chance to be a “Bat Boy” at an LSU Baseball game, a signed “Blue Dog” print and a motorized ice chest. Auctioneer Brian Fourroux was on hand to get the crowd excited.

This year’s gala included several new features. After dinner, guests were reminded of the importance of the cause while viewing a slideshow tribute to PALS. Another new addition was the “Fund-a-Cause” portion of the auction, where guests were invited to pledge money to be used toward the purchase of a communication device for The ALS Association’s medical equipment loan closet. The “Fund-a-Cause” raised $11,350.

Photos from Sharon Holeman Photography have been posted on the chapter’s Facebook page, and they are available for purchase.

A big “thank you!” goes out to our sponsors: JPMorgan Chase, The Boo Grigsby Foundation, Credit Bureau of Baton Rouge Foundation, The Celtic Group, Custom Healthcare, The Huey and Angelina Wilson Foundation, Albemarle Foundation, Stonehenge Capital Company LLC, Wright & Percy Insurance, Allain-Lebreton Co. LLC, Inkling Design Studio, and The Advocate.

Planning will soon be underway for the 2013 gala. If you’d like to serve on the committee, please contact Jamie Craig at (225) 343-9880, ext. 2 or e-mail jamie.craig@alsalams.org.


The ALS Association Louisiana-Mississippi Chapter in partnership with Cecil J. Picard Center for Child Development and Lifelong Learning holds essay contest for Louisiana fourth graders in celebration of ALS Awareness Month in May

 

Many ALS Patients, a handful of those being Veterans, from all walks of life will participate in National ALS Awareness Month in May. Their mission and that of The ALS Association will be to recruit more people to raise awareness about ALS on a year-round basis.

The ALS Association Louisiana-Mississippi Chapter will hold several local awareness activities, including the sixth annual essay contest for Louisiana fourth graders.  This year the chapter, in partnership with the Cecil J. Picard Center for Child Development and Lifelong Learning, invites students to write their thoughts on exactly why Lou Gehrig considered himself “the luckiest man.”  The chapter’s Public Education and Public Awareness Committee, along with other essay reading volunteers, will determine first, second and third place winners.  These three winners will be presented awards at the State Capitol, in front of the Louisiana State Senate on Wednesday, May 23, the Chapter’s State Advocacy Day.  They will also be awarded cash prizes, and a class pizza party for the first prize winner. The school with the highest percentage of participation will win a bundle of art supplies donated by local community partners. 

This is an opportunity to educate children on the legendary New York Yankee, Lou Gehrig, who was diagnosed with ALS in the prime of his record-setting baseball career. Through it all, Gehrig presented a public face of courage, perseverance and humility.  The winning essay will highlight both Gehrig and the disease, which ultimately became known as Lou Gehrig’s disease.

If schools or teachers would like their fourth graders to participate in the contest, please have the entries and School Participation Form into the chapter’s office by Friday, April 13.  If you need a School Participation Form or have any questions, please contact Nicole LeGlue at (800) 891.3746 Ext. 1 or by email at nicole.leglue@alsalams.org.

 


 Chapter Awarded a grant through the Huey and Angelina Wilson Foundation

Wilson Challenge Grant

We are so grateful to the Huey and Angelina Wilson Foundation for the generous gift of $25,000. This donation was part of a grant program that challenged our chapter to raise $25,000 from new donors in one year. We actually raised more than $172,000! Thank you to everyone who was a part of this success!

Featured in the picture is Executive Director of the chapter, Kelly Hutson Viator, and Dianne Stephens, Vice President Adminstration of the Huey and Angelina Wilson Foundation.




 


 

     

 

Canon Hospice offers grief support groups in the Metairie / New Orleans area.

 

The support groups are held at Canon Hospice located at Ste 400, 1221 South Clearview Parkway New Orleans, LA 70121-1011
 
Adult Grief Groups- 1st and 3rd Tuesday of each month from 4:30PM to 5:30PM in the family room

Children’s Grief Groups- 1st and 3rd Saturday of each month
9:30AM-10:30AM- Children (7-10) in Conference Room
9:30AM-10:30AM- Tweens (11-13) in the 2nd Floor Conference Room
11:00AM-12:00PM- Adolescents (14-18) in the Conference Room
*counseling for parents during Saturday groups as well

 

 


LSU & YMCA offer aquatic facilities to PALS 
 

 LSU has a pool with sling, as well as a life guard on duty, that can help people with disabilities into the pool. It is $10 per visit if the person is not a student/faculty member or related / married to a student / faculty member. For more information, please visit http://www.lsu.edu/urec/html/src_indoor_pool.html.

There are a couple of YMCA's that also have lifts for PALS into their pools. In Baton Rouge, there are two locations including the Paula Manship location at 8100 YMCA Plaza Dr. and the AC Lewis location at 350 South Foster Dr. Please check with your local YMCA to see if they have the lift as well and let us know at sherry.oliveto@alsalams.org. To join the YMCA, for an adult it is $40.00 or $47.00 with automatic drafting included. For a family to join, the fee is $50.00 or a $75.00 fee with automatic drafting included. Local YMCA's do offer a scholarship program but an application must be picked up at your nearest facility. YMCA reviews the applications year round and offer 50% off the monthly fee if accepted.

For our PALS in the Lafayette area, Our Lady of Lourdes is equipped with a pool with lift as well. For details, please call Lourdes at 337.289.2000 and ask for the Aquatics Department.